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Asperger's Syndrome
Chromosome Deletion Outreach, Inc. - Organization providing information and support to families affected by any type of rare chromosome disorder
cri du chat syndrome
National Down Syndrome Congress - Home page for a national advocacy organization on Down Syndrome.
The National Down Syndrome Society
Down Syndrome Home Page - Home page for the Down syndrome listserve.
Down Syndrome on the Internet - links to down syndrome web sites.
11q Research & Resource Group - Provides support and organizational efforts for parents of all children with 11th chromosome abnormalities.
National Fragile X Foundation - A site with to information and resources about fragile X syndrome.
FRAXA Research Foundation - national nonprofit organization providing information on Fragile X syndrome.
The Hydrocephalus Association - Includes Hydrocephalus fact sheet.
Renee's Communique's - Information on kids with special needs XXYY or Klinefelter Syndrome.
Prader-Willi Syndrome Association (USA) - A national organization for families, professionals and service providers dedicated to improving the lives of people with Prader-Willi syndrome.\
The Comprehensive Williams Syndrome Home Page
World Association of Persons with Disabilities - A website for persons with disabilities.

Support for Community Living

The Center on Human Policy - A Syracuse University based policy, research and advocacy organization. Includes information about ordering Human Policy Press publications.
The Institute for Community Inclusion - Advocates for the right of all people with disabilities to be full participants in their communities.
The Institute on Community Integration - A University of Minnesota affiliated program dedicated to improving community services for people with developmental disabilities and their families.
National Home of Your Own Alliance - A Technical Assistance Center at the University of New Hampshire Institute on Disability.
Rehabilitation Research and Training Center on Aging with Developmental Disabilities
The State of the States in Developmental Disabilities - Examines public spending for mental retardation/developmental disabilities services in the United States.

Employment/Transition to Work

Office of Disability Employment Policy - The web site includes PCEPD publications, press releases, general information on the Committee, and contact information for state liaison organizations.
Program on Employment and Disability - Resources and information on employment of people with disabilities.
Employment Support Institute - Helping people make better decisions about employment options and policies.
JAN - Job Accommodation Network, accommodations for workers with disabilities.
Life Skills for Vocational Success - A resource of trainers to improve life skills
The Transition Research Institute at the University of Illinois - Headquarters for the National Transition Alliance for Youth with Disabilities, promotes the inclusion of youth with disabilities in the national school-to-work efforts.
Virginia Commonwealth University - Rehabilitation Research and Training Center on Workplace Support.

General Information for Families

Beach Center on Families and Disability - Research on families, disability and policy.
Do2Learn - Free Activities and Games - A website for those with special learning needs.
Family Village - A Global Community of Disability-Related Resources.
The National Parent Network on Disabilities - Dedicated to empowering parents.
The Sibling Support Project - An excellent site of sibling support resources, workshops and connections regarding brothers and sisters of people with disabilities, chronic illnesses or mental health concerns.
Special Child Magazine - free online publication for parents and caregivers of children with special needs.
SSA Home Page - Information and publications on entitlement programs for people with disabilities.

Special Education

Council for Exceptional Children - professional organization dedicated to improving education outcomes for students with disabilities.
Council of Parent Attorneys and Advocates - Organization established to improve the quality and quantity of legal assistance for parents of children with disabilities.
National Early Childhood Technical Assistance System (NEC*TAS) - A federally funded technical support program for early childhood education at the Frank Porter Graham Center at the University of North Carolina.
National Center on Educational Outcomes (NCEO) - Provides national leadership in the identification of outcomes and indicators to monitor education results for all students, including students with disabilities.
National Information Ctr. for Children and Youth with Disabilities
Special Ed. Resources on the Internet

Assistive Technology

AbilityHub - Assistive Technology for computers and disability.
Alliance for Technology Access
NCSA Mosaic Access Page - Information on how people with disabilities can use Internet and the WWW.

Health Promotion and Disability Prevention

American Academy of Pediatrics - An organization of 50,000 pediatricians dedicated to the health, safety and well-being of infants, children and young adults.
Alliance To End Childhood Lead Poisoning - A national non-profit organization dedicated exclusively to preventing childhood lead poisoning.
Families USA - National nonprofit group which advocates for health and long-term care services.
FAS Community Resource Center in Arizona
The Fetal Alcohol Syndrome Prevention Office - Part of the Centers for Disease Control and Prevention's National Center on Birth Defects and Developmental Disabilities
Healthfinder - A gateway consumer health information web site from the United States Government.
Health Promotion and People with Developmental Disabilities - Information on challenging behaviors, general health/well-being, personal care, sexuality and mental health/psychotropic medications.
Newborn Screening Information
World Health Organization's Helmet Initiative - Promoting use of bicycle and motorcycle helmets worldwide.

Disability Resources

The Archives and Library on Disability at the University of Illinois at Chicago
C L A S Culturally & Linguistically Appropriate Services -Early Chilhood Reserach Institue - Collection of Resources.
disABILITY Resources on the Internet
Internet Resources for Special Children (IRSC) - Web site with information relating to the needs of special children on a global basis.
National Clearinghouse of Rehabilitation Training Materials
National Rehabilitation Information Center - Funded by NIDRR (Nat. Institute on Disability Rehabilitation and Research) as a collection and information resource for NIDRR projects.
PCMR- President's Committee on Mental Retardation
Quality Mall - Person centered services supporting people with developmental disabilities - showcase of promising practices and innovations.

Accrediting Organizations

The Accreditation Council - A resource for individuals, families, advocates, provider organizations, professionals and the public sector.
CARF

National Organizations

AAPD(American Association of People with Disabilities)
The American Association on Mental Retardation - national organization for professionals and others interested in the field of mental retardation.
American Association of University Affiliated Programs (AAUAP)
ANCOR(American Network of Community Options and Resources)
The Bazelon Center for Mental Health Law, a national organization which focuses on legal advocacy for the civil rights and human dignity of people with mental illness.
Best Buddies
Consortium for Citizens with Disabilities - A coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
Consortium of Developmental Disabilities Council
Epilepsy Foundation of America - National organization that works for people affected by seizures through research, education, advocacy and service.
Genetic Alliance - A national coalition of consumers, professionals and genetic support groups for concerns on genetic conditions
Kiwanis International - An international service organization with numerous projects focusing on individuals with mental retardation and the worldwide prevention of iodine deficiency disorders, including mental retardation. See also Kiwanis Aktion Clubs.
National Association of Developmental Disabilities Councils
National Association of Protection and Advocacy Systems - An association that which represents federally mandated programs that protect the rights of persons with disabilities.
National Organization for Rare Disorders - Technical assistance and information dissemination on rare disorders.
Self Advocates Becoming Empowered
United Cerebral Palsy
TASH

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